Rare Disease Day February 28,2018

Kennedy’s Disease is near and dear to my heart as my husband suffers from this rare disease, I would like to continue to raise awareness as to help researchers learn how to help the many who struggle with this rare disease daily. I have had the opportunity to meet some great people through websites and conferences as we continue to learn more and more about what affects it has all of daily lives whether we are partners, or the inflicted ones. There is always a new challenge and as I would like to do as much as we can together to help one another with whatever needs to be done.

One Reply to “Rare Disease Day February 28,2018”

  1. I am so sorry to hear about your husbands disease. Rare disease day is a day that is important to me as well as I suffer from a few rare incurable diseases myself. I am truly grateful that you are raising awareness to find a cure for your husband!

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